Joyce Strazzabosco

Joyce Strazzabosco joined the bleeding disorders community in April, 1984, when she became the President and CEO of the Mary M. Gooley Hemophilia Center, Inc., from which she retired at the end of 1999. She lives in the greater Rochester NY area on a secluded plot of land called Paradise, with two dogs and one cat. She lost her husband, Bill Reigelman, to cancer in 2015. In addition to great joy, he gave her three terrific stepkids, adults who each chose great spouses and have given her five wonderful grandchildren. She values candor, integrity, and laughter. And chocolate.

Here is a summary of her work in service to the bleeding disorders community:

Mary M. Gooley Hemophilia Center, Inc.
  President and CEO (1986-1999)

National Hemophilia Foundation:
  Chair, Long Range Planning Committee (1989 – 1990)
  Chapter Development Committee (1993 – 1995)
  Strategic Planning Committee (1995 – 1996)
  National Prevention Awareness Campaign Steering Committee (2000 – 2002)

New York State Hemophilia Advisory Panel
  Member (1986 – 1999)

U. S. Department of Health and Human Services, Maternal and Child Health Bureau:
  Blood Products and Therapeutics Working Group (1996 – 1999)
  HHS Region VI Hemophilia Center Site Review Team (1989)
  Advisory Group for Computerized Hemophilia Patient Care System (1988 – 1989)
  Hemophilia Grant Review Panel (1988)

World Federation of Hemophilia
  Volunteer Trainer, National Member Organization Training, Huelva, Spain (2002)
  Authored WFH publication “Group Dynamics and Team Building” with Ann-Marie Nazzaro, published by the
  World Federation of Hemophilia, 2003

The Hemophilia Alliance
  Grants Committee Chair (2008 – 2013)

The Hemophilia Alliance Foundation
  Board Chair (2013 – present)

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