Who We Are
Since 2006 the Hemophilia Alliance intended to dedicate its discretionary revenue to the bleeding and clotting disorders communities. Beginning in 2009, with the establishment of a Grants Board, the Alliance did just that. That year grants totaling $250,000 were awarded to national and regional organizations as well as local consumer-led organizations and treatment centers. The awards for 2010 were $320,000, for 2011 – $340,000, for 2012 – $364,000, for 2013 – $476,100, for 2014 – $482,100, for 2015 – $525,150, and for 2016 – $708,500.
Initially the grants were reviewed and approved by a Board of individuals with experience in the bleeding and clotting disorders communities. In 2013 the Hemophilia Alliance Foundation was established as a nonprofit corporation in Pennsylvania. The Hemophilia Alliance Foundation is seeking 501(c) (3) tax exempt status with the U.S. Internal Revenue Service.
What We Do
The Hemophilia Alliance Foundation is supported by funding from The Hemophilia Alliance (make this a hot link to the HA webpage). The goal of the funding for the foundation is to reinvest and support non-profit organizations within the bleeding disorders community. The intent of the grants is to better serve the community with resources that will lead to better patient care.
How We Do It
Non-Profit organizations may apply for a one-time grant for a specific purpose of no more than 12 months duration for a maximum amount of $5,000. It is not the intention of the Foundation to fund recurring expenses. Grant applications are accepted once each year and the recipient has 12 months from the date of receiving the grant to spend the grant dollars. Grant proposals should be for projects that will strengthen the organization. Collaborations are encouraged and can increase the grant request proportionally (two organizations collaborating can submit a grant for a maximum of $10,000, 3 organizations – $15,000).